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Dear Jacqui

Welcome to 2016, albeit three months down the track. No doubt everyone has settled back at work after a break over the holiday period which seems so long ago now.

It has been a busy few months since we opened our site early February .  We had 11 groups start in February - a massive 209 students! Another 135 students are commencing in March, with additional requests coming in every day.  Well done to our facilitators for all their hard work in getting organised!

During February, Kathy and Jacqui from our team travelled down to Wagga Wagga and Sydney for facilitator training - check out the photo of our group in Wagga.

Michael Moriarty and Anne Moehead presented the Dementia Competencies to the Chief Nurse and all Local Health District directors of Nursing at the Nursing & Midwifery Office NSW Ministry of Health on 19th February. The presentation generated a lot of interest and support from those present, and we are hoping that these directors of nursing will encourage take up of the competencies with their staff. 

Commencing this year, our courses are also being advertised via HETI statewide so hundreds of requests to undertake courses are coming our way. So if you are a facilitator and need additional students for your course send us an email via our Support Helpdesk.

March 15, 2016

Facilitator Training

To be a facilitator you need to be willing to share your advanced knowledge on dementia, have a commitment to seeing others educated in dementia and the ability to support participants as they work their way through the courses.

If you have a group of people (min 4) who are eager to attend training or a group of facilitators that would like a refresher then let us know.

If you have access to a room with PCs that have internet access – even better!

We have a waiting list of people keen to sign up and get started.

Check out the 2016 scheduled training dates we have set below and book a place now! 

Facilitator Training

Do you have a passion for dementia? Are you are champion for dementia in your workplace? Do you have the time to facilitate in your busy week and the desire to guide and support others to progress through the courses within the Dementia Care site? Is education part of your role? If so, then facilitator training may be something for you.   

Another option is to pair up with other seasoned facilitators until you feel confident to lead your own group with another facilitator. A great learning experience.

Facilitator training is a hands on experience, groups are kept small which allows for enhanced learning opportunities.

Dates / Venue 

  • Wednesday, June 15, 2016 - Sutherland
  • Monday, August 15, 2016 - The Tweed Hospital 

Contact us via our Helpdesk email if you wish to lock into these dates.  Places are limited so don't miss out!  


Positive Approach to the Care of the Younger Person with Dementia
Currently we have a pilot group (consisting of 22 students), many of whom are facilitators juggling their own job and overseeing other students in courses, going through our new course: Positive Approach to the Care of the Younger Person with Dementia.

Once they have completed the course and given us feedback, we will make the necessary changes and then it will be officially released.  

The feedback has been amazing so far and participants have thoroughly enjoyed the course.  One member of the pilot finished the course weeks ahead of the group and there were a few others not far behind.

We envisage after the pilot group has completed the course and we review the feedback and make necessary changes, that the course will be available mid year to everyone.  So lock in now for a place as it's sure to be popular once the word gets out.

The aim of this course is to increase participant knowledge and understanding on:

  • The unique challenges facing the person with younger onset dementia and their carers
  • The burden of disease and its impact
  • Major causes of dementia in the younger person
  • The risk factors, assessment and diagnostic issues
  • Supporting and assisting the younger person with dementia
  • Legal implications of capacity and competence
  • The global perspective and emerging issues

Course Overview:

The course is broken up into 7 weeks:

Week 1:
  • Overview of the Course
  • New to eLearning
  • Overview of the Course
Week 2: 
  • Unique challenges
  • Unique challenges of Younger Onset Dementia
  • Burden of Disease and Fiscal Implications
  • Diagnosing Younger Onset Dementia
  • The Needs of the Younger Person with Dementia
  • Major Causes of Younger Onset Dementia
Week 3: 
  • Causes of younger onset dementia
  • Diagnosis of Younger Onset Dementia
  • Alzheimer’s disease
  • Vascular dementia
  • Frontotemporal lobar degeneration (FTLD)
  • Lewy Body Dementia (LBD)
  • Parkinson’s Disease
  • Huntington’s Disease
Week 4: 
  • Risk factors, assessment and diagnostic issues
  • Alcohol related dementia and Korsakoff’s Syndrome
  • Human Immunodeficiency Virus (HIV) /Acquired ImmunoDeficiency Syndrome (AIDS) 
  • Related Dementia
  • Multiple Sclerosis (MS)
  • Traumatic Brain Injury (TBI)
  • Dementia among those with Intellectual disabilities
  • Genetic risk factors, assessment and diagnosis
Week 5: 
  • Issues affecting the younger person with dementia
  • Loss of self determination
  • Employment Issues
  • Anxiety, Agitation, Depression and Grief
  • Sexuality, Intimacy and Disinhibition
  • Case Study
  • Relationship and social issues
  • Impact on the family
  • Children as Carers
Week 6: 
  • Supporting and assisting the younger person with dementia
  • Community support
  • Employment
  • Managing behaviour
  • Residential care for the younger person with dementia
  • Cost of care
Week 7: 
  • Capacity & Competency
  • Capacity & Competency
  • Legal and financial planning
  • Care planning for younger onset dementia
  • Physical wellbeing and the prevention of dementia
  • Policy and government action
  • What is happening on the world stage
2016 North Coast Aged Care Symposium
On Thursday and Friday July 21-22, 2016 a two-day aged care symposium, entitled: The Forgotten Issues of Dementia Emerging Insights and Developments will be held at the Ballina RSL.  A top range of speakers will attend along with breakout sessions.  The symposium will have some well respected speakers who are both engaging and expert  in their field.

Past symposiums have received excellent reviews. So mark this date on your calendar and start planning now to attend. Spaces fill fast!

The symposium has attracted a number of international presenters: Professor Wendy Moyle, Dr James Burrell, Professor Gerard Byrne, Dr Emily Ahern and Anne Cumming to name a few.

The symposium is excellent value for money at $120.00 for the the 1½ day event.

A highlight of the symposium will be an opportunity to experience a walk through 3D brain.


Speakers to date include:
  • Dr Emily Ahearn

  • Judy Bartholomew

  • A/Prof Cramell Peisah

  • Dr Hugh Fairfull-Smith

  • Dr Gerard Byrne

  • Dr Lana Kossoff

For further information contact:
Attention NSW Health Members: Profile and Staff ID

In 2016 the Dementia Care Competency & Training Network will be linking with HETI – this will affect NSW Health members only. As a result, from the new year, it will be a requirement that NSW Health staff include their staff ID in their profile. In preparation for this we are asking all members to go to their profile and add their staff ID (also known as your payroll number). The reason for this is to allow for any course you successfully complete, within the Dementia Care Competency & Training Network, to be automatically updated with HETI.  

If you do not see the field to add your staff ID then try logging out and back in again – the staff ID field should then appear.

If you have not done this, every time you log in, the system will continually take you to your profile page until this has been completed.

Remember – this is only applicable to NSW Health staff who are members on the site. Those working outside of NSW Health will not be affected.

Facilitator Refresher Day

spider.jpgAnother fun filled day at the University of NSW.

Thanks to those who were able to attend.  We did have quite a few who were unable to come at the last moment - we missed you!!

We had a great day sharing experiences, networking and working out better ways of facilitating our courses.

We even had an unwelcomed visitor that the group nicknamed "Henry" who was constantly keeping us on our toes while presenting to the group.  Secretly the facilitators were wishing that Henry would land on Jacqui as she was moving the whiteboard.

For those who attended they were given a hard copy of the most important things from the Facilitator Manual along with a handy flowchart of what to do when you want to run a course. A new and valuable resource.

Our "Munch and Learn" session was presented by Belinda Goodenough and Kim Burns.  A very informative session and we all came away with some goodies to help us when we head back to our workplace. So many choices for lunch too!

If you couldn't make it this time, be sure you don't miss out on this great opportunity to share your experiences with your fellow facilitators when it next comes to Sydney.  Many came away with new ideas that will make their jobs a lot easier when facilitating courses.

Even seasoned facilitators were so glad they attended.


The following poem was written and submitted by Daniele Allen:


Caring for Cognitive Impairment Campaign

The Caring for Cognitive Impairment campaign is about improving our knowledge and care practices, providing better outcomes for patients, hospitals, staff and loved ones, and reducing the risk of harm in hospitals.

You have probably seen this logo popping up in the footers of some of our colleague's emails.  If you haven't visited the site, do so now.  A great website with plenty of resources.


You can check out to see if your hospital is participating by visiting the website. Have you committed? 

Website Link: http://cognitivecare.gov.au 

Facilitators - starting up a new group for a course?

We would ask all facilitators to check all student's emails are valid before forwarding to the Dementia Care team.  One way to do this is by sending out a welcome email saying they have been succesful in securing a place in the next course along with your facilitator/s' details. Having incorrect email addresses causes a lot of work behind the scenes and also causes frustration to the students when they wonder why they haven't received an invitation.

We need your student information in an electronic format that is editable ie Word, Excel or even inside an email.  This allows us to copy and paste your student information into our invitation template.

We would also remind facilitators that we would appreciate at least a minimum 3-4 week lead time to receive these emails so we can set up your groups to be sent out two weeks before your course commences.  Sometimes this is unavoidable but if you can plan ahead that would help everyone.

So if you have courses planned for the year, please let us know now by emailing the Support Desk with your details. 

Facilitator Training at Wagga Wagga

Kathy and Jacqui travelled down to Wagga in February to teach some new and eager facilitators at the Charles Sturt university.  Two flights later they finally arrived late in the afternoon.  No rest for these two, as they had to set up for the YOD evening online chat, an hour after they arrived.  Finally after all that was done at 7pm, time for some dinner and then answer any helpdesk enquiries and prepare for the next day.

Belinda Scott, who requested the training down there, did a wonderful job of looking after them.  From picking them up at the airport, taking them to their accommodation and out to the uni the next day.  Belinda organised a great morning tea for everyone.

The day went well and after Kathy and Jacqui had finished the training, Belinda decided as they had a little free time before their return flight home, to take them on a mini tour of the town. Here are a few photos that were taken on the day.

Thanks Belinda for a great day - you went over and beyond by making us feel so welcome. We hope your new group of facilitators enjoy their new skills. They were a wonderful group.




No wedding bells this time but the birth of a beautiful baby. We just had to share these gorgeous photos from one of our facilitators who is currently on maternity leave.

Thanks so much for sharing Angelique and we look forward to having you back on board when you return to work.



Come join us on Facebook!

Come be our friend on Facebook.  It is a fantastic way of keeping in touch with the latest dementia news and it also provides a great way to network with other like-minded people interested in Dementia Care.

Our page is becoming popular with some posts being reposted around the world and shared over 3,500 times. We would love you to share your comments and stories on our page.

Make sure you "like" our page to spread the word!



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