Kate Swaffer

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Kate Swaffer is committed to meaningful dialogue with a wide range of stakeholders about the critical issues impacting a person living with a diagnosis of dementia and their loved ones,

Advocate and activist for dementia and aged care, person living with the diagnosis of a younger onset dementia. Honours student at the University of SA writing a thesis on dementia. Member of Alzheimer’s Australia committees: National Consumer Advisory Committee, Consumer Dementia Research Network, Younger Onset Dementia (YOD) National Network. Advisor to numerous nursing home groups on dementia care, performer at Adelaide Fringe 2012 on living with dementia called My Unseen Disappearing World, International and Australian presenter and keynote speaker on dementia. Patron for play about YOD, The Visitors, Urban Myth Theatre Company, 2013.

Previous careers – Registered nurse in aged/dementia care and operating theatres, chef, executive in health care sales.

Aim: To increase awareness of, and improve services for dementia and aged care

Website: http://kateswaffer.com


Creating life with words: Inspiration, love and truth

Kate Swaffer

Just for a laugh…

April 2, 2016, 7:04 am

~ ‘PECKER’ BRIDGE ~ Apparently no one considered the sun when designing this wall……  Anyone want to take a guess where this wall is located? …scroll down . . . . ‘SAINT PETER’S BASILICA’  Now, I don’t care who you are, THAT IS funny!! Sincere thanks to my good friend Glad-bags for this via email yesterday. Tagged: Just for a laugh... ...

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Contrasting models of support (trying again!)

March 30, 2016, 8:56 am

As promised on Monday  I am adding these two pathways again, in a different format, and in the hope they are able to be read. The first is the Medical model of ‘care’ currently still offered as the post diagnostic pathway to people with dementia, which simply supports Prescribed Disengagement® alongside the following is the Social/disAbility pathway… ...

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Gayle’s law

March 29, 2016, 7:26 am

In honour of a family friend, fellow nurse, daughter, wife, mother, aunty, and best friend, Gayle Woodford (nee Thompson), please, if you are a nurse, anywhere in the world wear a black arm bank in honour of Gayle today. Please also consider signing the petition for the safety of all nurses as well: “Remote Area… ...

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Pathway of ‘care’ vs disAbility support for people with dementia

March 28, 2016, 9:52 am

The following are the two pathways of support published in my book, (Swaffer, K 2016, What the hell happened to my brain?: Living beyond dementia, Jessica Kingsley Publishers, p.p. 165-166) that many have recently asked me for. So, in case you simply wish to refer to them, I am adding them from a set of power point slides that… ...

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Names and labels WILL and DO hurt us…

March 26, 2016, 11:13 am

Harry Potter and the Dementors is a topic I have written about before here, to describe the feelings I still sometimes have about the effects of having dementia. The Power of Language and dementia, language and respect, and language in general and the rights of people with dementia to decide what is and what is… ...

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Please join me if you live in Adelaide…

March 24, 2016, 8:47 am

Tagged: Author: Kate Swaffer © 2016, Dymocks Burnside Village, Meet the author: 28 April 2016 ...

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Alzheimer’s Australia Communique 2016

March 21, 2016, 6:45 am

Last week, I was privileged to be one of 17 people with dementia to participate in a Parliamentary Summit, alongside 44 family care partners, the CEO Carol Bennett, President Graeme Samuel and a number of staff from Alzheimer’s Australia. From the media release: “The Communique has been developed by consumers from across the country attending… ...

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Please stop disrespecting us

March 20, 2016, 9:32 am

No time to wait People with dementia Must no longer be willing To accept the disrespect The exclusion Or the passive stigma Still so evident in our educated society If a group of researchers Or any other group Who have been saying They respect us And that they include us Who are very happy to use us And… ...

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Words matter, but actions speak the truth

March 19, 2016, 6:11 pm

No, I am not just over-tired or feeling a bit burnt out, but I am getting very annoyed at having to continually ask why, yet another group organising an event has published a list of speakers (yes, again), the topic of Consumer Directed Care, and yet, did not bother to invite a speaker with dementia, the very cohort… ...

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Random meetings and stories of life

March 16, 2016, 6:04 pm

I’ve had an interesting, if somewhat curious end to my day, one with a conversation with a lovely blog follower whom I actually got to meet in person, and who quite remarkably knew of the religion of Coonyites. This is the first person, beyond my childhood who I’ve met that has heard of this religion, which… ...

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